Personal impact of epilepsy and well-being in individuals with epilepsy


ÖZDEMİR Ö., Tuglu F.

Epilepsy Research, cilt.212, 2025 (SCI-Expanded, Scopus)

  • Yayın Türü: Makale / Tam Makale
  • Cilt numarası: 212
  • Basım Tarihi: 2025
  • Doi Numarası: 10.1016/j.eplepsyres.2025.107536
  • Dergi Adı: Epilepsy Research
  • Derginin Tarandığı İndeksler: Science Citation Index Expanded (SCI-EXPANDED), Scopus, Abstracts in Social Gerontology, BIOSIS, EMBASE, MEDLINE
  • Anahtar Kelimeler: Epilepsy, Personal effect, Well-being
  • Kırklareli Üniversitesi Adresli: Evet

Özet

Aim: The aim was to examine the personal impact of epilepsy on well-being, and influencing factors in individuals with epilepsy. Method: This cross-sectional descriptive study was conducted on 138 individuals with epilepsy. Data were collected using the “Descriptive Information Form,” the “Personal Impact of Epilepsy Scale (PIES),” and the “World Health Organization-Five Well-Being Index (WHO-5)”. In the statistical analysis, p < 0.05 was considered significant. Results: The mean age of individuals with epilepsy was 31.22 ± 13.12 years, and the mean duration of epilepsy diagnosis was 9.93 ± 6.84 years. The mean WHO-5 Well-Being Index score was 62.55 ± 26.26 and the mean PIES scale score was 34.27 ± 20.27. According to the regression analysis results, well-being (β = −0.568; p = 0.000) and the duration of epilepsy diagnosis (β = −0.130; p = 0.041) were negative predictors, while the number of seizures (β = 0.209; p = 0.001) and age (β = 0.180; p = 0.010) were positive predictors of PIES. This explained 52.8 % of the total PIES score. Conclusion: The well-being of individuals with epilepsy was found to be above average, and the personal impact of epilepsy was found to be low. Low well-being of individuals with epilepsy increased the negative impact of epilepsy on the individual. Number of seizures, older age, and the shortness of the diagnosis period negatively affected the individual with epilepsy personally. Health professionals need to focus on the influencing factors of individuals with epilepsy to increase their well-being and reduce the negative effects of epilepsy.